Tuesday 29 December 2015

One Hell of a Hiatus!

 Greetings lovely people! 


 As the title of this post suggests the past...bugger, almost year has been one hell of a hiatus. Now where to start...


Seizures

 Success! After many tests, trial and errors and tears I finally have a diagnosis. I turns out that I'm not epileptic but instead I suffer from Non-Epileptic Seizure Disorder (NES). It seems a bit strange that the condition doesn't have it's own name, the term NES referring to what it isn't rather than what it is but the subset I suffer from is specifically Psychogenic NES - Dissociative seizures. In simple terms it is seizures brought on because of extreme emotional/mental distress, in my case getting so stressed/anxious/lost/wound-up that my brain would overheat and shut down. Not fun.

 Luckily with having a diagnosis it's made it easier to treat. Then again it happened the other way around for me, having gone to my GP about depression/anxiety in February, starting on medication in April and not getting a definitive diagnosis until September. My GP did advise that I contact my neurologist about and when I saw him for my last appointment he was absolutely wonderful, very reassuring and stressed that NES is a legitimate condition and not something that I'm making up or something utterly unknown that's wrong with me. 

BPD
 As a result of further therapy and other related...everything I've been diagnosed with Borderline Personality Disorder. Again, it's not fun but it's nice having a diagnosis. I'm still waiting on (surprise surprise) more therapy. It definitely explains a lot anyway; my mental health has been constant extremes from one to another and I'm looking forward to achieving some state of normality. 

My low point was definitely last month. The doctors' surgery that I go to is split between two practices, I was already having a bad, bad day and, when going for a medication review, it turned out that I'd gone to the wrong practice. My Mam was due to pick me up from the one I'd went to after my appointment and I'd spend a nice day with her and my niece. Instead the receptionist informed me in a very, very rude way that I wouldn't make it to my appointment at the other practice in time and that I should pay closer attention; then threatening to place a note on my record there that I was unreliable to turn up to appointments. Because it's totally my fault that because of seizures I'm not allowed to drive, public transport is rubbish and the member of staff who made my appointment was rather ambiguous on which surgery it was (I've been going to just one of them since I was...born). 

 On hearing that news, my Mam taking me over to the other surgery and being told that the doctor I was seeing had already gone to a meeting it resulted in somewhat of a breakdown. It's the first time that my niece has ever seen me in that state and I really, really hope that it's the last. It's not something a three-year-old should have to see; luckily I'm on the waiting list for more specialised therapy so it shouldn't be happening again.

Wedding Planning...
 My Bridal Minions are awesome! I'm not using the term 'maids' because of having a mixed-gender team, plus it just seems like a rubbishy word. I'm well on track with dresses, close to getting a venue booked and decorations are well on track! :D one positive that's been ongoing. It might seem like a stress but I'm having fun with it, 18 months to go!

Stormageddon

 Stormageddon turned two this month, we had a little party for him - isn't he lovely!? Grumpy as ever, gorgeous as ever.



 Anyway, more exciting posts to come! Auf Wiedersehen for now <3