To my Cysters and Cyblings (Ovarian Cyst Care Rant)

 Yep, it's that time again kids! Sit down, shut up and settle in for another edition of Angry Bitch Rant Time. Today's topic: healthcare.

 Ten years ago my Mam took me up to the Queen Elizabeth Hospital with severe abdominal pain. I was squealing, crying and could barely move. I'd never felt anything like it. I was rushed through triage, saw several nurses and doctors, given morphine while waiting for the consultant - and found out that I'm allergic to morphine so no more of that for me! It was a chore just opening my eyes by the time the consultant got there, a nice young doctor who - I shit you not - was the spitting double of Arnold Rimmer; my Mam agreed so it wasn't just the morphine talking. He'd been called down to confirm that, yes, it was appendicitis and, yes, slice her and dice her, get the bastard out. But after a feel of my tummy he stopped and frowned, and asked me if I'd had pain like it before. I said I'd had similar pains a few weeks ago but they'd been on the other side so unless I had two appendices then it probably wasn't that. He frowned again, explaining that (thankfully) they wouldn't be whipping me down to surgery and I'd be kept overnight for more tests.

 As I was only 14 at the time I was taken over to the children's department and once my Mam went home at about 2am a nurse came in to chat to me and give me more painkillers. When I'd washed down the codeine and ibuprofen she asked if I'd had sex recently and immediately I panicked. Firstly, I was only 14 and thought I might get into trouble; secondly, could I be pregnant or have some horrible disease? But the scariest part... I hadn't, I'd been raped a few month beforehand. I didn't have the vocabulary at the time to tell her this so I just said yes and started crying. To her credit, she comforted me, reassured me I wasn't in trouble and she wouldn't tell my Mam, and rushed a pregnancy and sexual health test for me. Thankfully I wasn't but that just raised more questions. It wasn't my appendix, it wasn't pregnancy or and STI, so what could it be? Over the next couple of days I was kept in hospital (not a great way to spend my half term) and given I was on the children's ward I was bored out of my mind and surrounded by screaming kids. I got a lot of reading done but I was scared, in pain and bored while waiting for the results of blood tests and waiting for an ultrasound. 

 They day after my scan my best friend Devon came to see me. The visit did me the world of good, while it didn't stop me being in pain it was easier to forget about it - and she brought me Skittles. So far the painkillers I'd been on weren't taking the pain away but doped me up so much that I didn't care. We were right in the middle of giggling about Doctor Rimmer when another consultant, a white haired, well spoken, older man - late 50s I'd say - and without introducing himself or asking if it was okay, he bluntly said "lift your shirt please, I'm going to feel your stomach". That was uncomfortable enough on his own, not only because he pressed hard and his hands were cold, but because this stranger skipped introducing himself to the 14-year-old girl he wanted to have a feel of. In any other context this would be gross and criminal, but because he's a doctor it was just put down to poor bedside manner. Well, some people put it down to that, I put it down to him being a massive dickhead. After a feel and a frown he explained he'd looked at my scan and all he could find were ovarian cysts. Case closed, please cure me - right? I bloody wish.

 According to Doctor Rude "ovarian cysts shouldn't cause pain, it must be something else." I was discharged after this consultation and put on the waiting list for more outpatient tests for everything from digestive function, kidney function, food allergies. But when they all came back clear they decided they finally had a concrete diagnosis: it was Psychosomatic. 

 Calling it psychosomatic pain was basically a fancy way of telling me that they believed it was all in my head and that I must just be another attention-seeking anxious teenager. Yes, I was (and still am) incredibly anxious. Yes, in later life I was diagnosed with non-epileptic seizure disorder triggered by severe anxiety. The definition of psychosomatic pain is "pain disorders caused by psychological stress or anxiety and is characterized by chronic pain in more than one area and lasts from months to years". I'm not an expert by any means but looking back, if I had disclosed my sexual assault to them then I can see why they'd think it was psychosomatic, but I hadn't. As far as they knew I was pretty happy, if a little skittish, so I must be looking for attention. I would have happily let it go and tried telling myself that they were right, it was all in my head, if the pain didn't keep coming back.

 Every now and then over the past ten years I've experienced the same agonising, stabbing, burning pain. Unable to stand, unable to sit up, unable to move, sweating, shivering, curled up and crying. I've done all the right things, gone to my GP and gotten a referral to gynecology, and been told after most of those scans "yes, you have a sizeable ovarian cyst, it should go away on its own - just put up and shut up". A few years ago I was hospitalised again with suspected appendicitis, though insisted the whole time that I was just taking up a bed that somebody else needed, but they wanted to get to the bottom of it. I was seen by another male consultant who again, had an appalling lack of bedside manner; this time not even bothering to ask for consent or speak to me at all - instead he woke me up by feeling my stomach while I slept. Of course being touched by somebody with such cold hands woke me up and led to tears and panic, while he made a sub-par effort to calm me down and explain who he was and why he was there. He couldn't understand why I was so angry and shouting at him for just "doing his job". In the end I was transferred up to Gyno, crying the whole way out of pain, exhaustion and frustration. Yet again, it showed what I knew was there: a big fat cyst the size of a tangerine.

 I'm writing this now because I'm having a particularly bad time with them at the minute and although I know I probably should seek some sort of medical attention, what's the point? I'll just be told yes, it's cysts again, toughen up and go home. And I'm far from the only one who's experienced this sort of treatment (or lack thereof). So many uterus-having people experience pain with ovarian cysts, and so many other gynecological conditions that leave them in agony, but all they hear from their healthcare provider is "yes, it comes with the territory of having a womb, deal with it". Surgical removal of cysts is only considered when they're extremely large as many do just go away on their own, and I'm sure that others who've gone through the unpleasantness of one bursting... Our doctors need to be doing better. We need more research into non-surgical treatment for ovarian cysts. Yes, small ones are normal, many people will get them at some point, and they do go away on their own. But when you go through years of pain and all you're advised is to tough it out because nothing can be done, we need to find something to do about it.

 My experience is just another case out of many, with sans-uteri medical professionals refusing to believe the pain that we're in because it contradicts what their textbooks say.  There's no two ways about it, just because you have a degree doesn't mean you decide how much pain my body is causing me; and just because you've never experienced it personally doesn't mean that it can't happen. This is my body with its fucked-up ovaries and fucked-up other parts that is screaming out "I'm hurting, please help." So when it comes to gynecology, here's the bottom line:

We Need to Talk About... How we talk about Feminism

 I'm normally reluctant to say it but I'm quite intelligent, more than I give myself credit for. I've been to university, I can discuss political and gender theory in-depth, and I could very probably argue my way out of a locked room. Or into one, depending who I'm arguing with. But I'm not always perceived that way. Something to do with the bright hair, tattoos and face full of piercings I think, but more likely to do with the way I talk. As a teenager I had a bad stutter and it still likes to make itself known now and then, so I had to adapt the way I speak in order to actually communicate - often in short, precise sentences. And you know what? I don't regret the way I speak, it's efficient, it gets the point across, and I feel it makes me more approachable. At the same time though I do get nervous when it comes to longer words and more complex sentences, because it's so hard to stop stuttering once you've been tripped up by something you're unfamiliar with.

When I first talk to somebody new about feminism I both love it and hate it. I love it because, well, why wouldn't I? I've just met an awesome new person. But at the same time I dread how they'll talk about it sometimes; they'll begin talking and I won't know if we're talking about the latest legislation affecting women's rights or the menu of a funky new fusion restaurant they've been to. Luckily this isn't always the case and I've met some utterly amazing feminist folks who are comfortable enough with their own views that they don't feel the need to describe something in ten ‘academic' terms when they can use six regular ones to make the same point. I was talking about it with a lovely feminist friend of this type a few weeks ago. Her first language isn't English and we recalled how we'd both be sat there in meetings and be thinking “...what?”. Yes, most of the time we'd understand the point that was made, but when it came to replying there were some times I was being looked at as though I'd just opened my mouth and dribbled down my shirt. I'd hear whispers and giggles, on one occasion having my point repeated back to the rest of the group using academic language, as if making my interpretation sound better and more understandable to them. It was embarrassing as hell and I don't think I went to another meeting for a long time after that. I felt shown up in a space that I had thought was meant to be safe and accepting.

And what infuriates me the most is when I see articles or hear talks about Intersectional Feminism using such jumped-up, alienating terms. This is by no means me having a go at academics and people who use this type of language, but I've got a lot of pent up frustration here. I believe that it has its uses and its place, but that place - for me - shouldn't be in a group that is meant to be accessible to everyone. Newly elected Labour MP Laura Pidcock made this point very well in her Maiden speech in parliament, somebody had to say it and I'm glad she was the one who did, she's bloody brilliant. By alienating people through use of language, we basically say to those who can't ‘keep up’ that their views don't matter, that they don't have a place in these discussions - when often they're the ones with the most to say and the most need to be heard. We shouldn't be laughed at or berated for not sounding ‘clever enough’. During my time at uni I had the ironic joy of being told that my draft of an essay on class, language, and access to education didn't sound academic enough. I was struggling to meet the word count because while I'd made my points precisely and clearly, they didn't sound ‘right' in an academic piece. I'm sorry, but bollocks to that.

Feminism has existed long before the term ever did. Every time women working in factories fought for equal pay, women in communities fought for their safety and bodily autonomy, and for our access to education. In deeds rather than words. Don't patronise us, just be considerate, and don't bloody giggle at us! That's just rude.

Mental Health Trends and Mindfulness: Just Give Me My Damn Pills

 Current mood: wine, bitter, pissed off. Improving.

 This is going to get a bit heavy and rambly in places, as I'm not in the best one at the minute.

 I've been going through some part of the mental health service or another since I was sixteen. I'm not embarrassed about it and I shouldn't be. The majority has been one-on-one counselling, though I had some brief flirtation with group therapy; that was a fucking barrel of laughs and it's just kept getting funnier. It's been wonderful in the past few years to see more people opening up and finally talking about the matter. Yet I've noticed as more people come forward there has been more and more marketisation of services and self-help. One night, at an extremely low point, I rang the Crisis Team and was asked by the guy on the phone if I had tried a colouring book, or a mindfulness app? Of course! Because when somebody is feeling at absolute rock-bottom all the need is to do some pretty pictures or piss about on their phone. Not to mention that sleep deprivation is a key factor in many people hitting crisis point, and the light from electronic devices being proven to negatively impact those sleepy hormones, so hunching over your smart phone is obviously the best thing to do. Anyway, I'm getting off topic. 

 Mindfulness has been lauded as some sort of mental health buzzword in the past few years and honestly? My mind is totally full. I know when I'm being a dick. I know when I'm being irrational. I know why I want to behave like this, even when I know it's not healthy. There's honestly so much crap in there I've reached the brim, and I know I'm nearing boiling point. Tell me one more time to colour in and I might take that pencil to your eye. The mental health system itself has a history of taking the sticky plaster approach: treating the symptoms rather than the root cause. I firmly believe that if service users had more one-on-one work to establish the cause earlier on rather than throwing them into whatever therapy type is trendy at the time then it'd save a lot of time, money, and suffering all round. 

 Historically, if you go back one hundred years or so then the popular thing to do was stick anybody with a mental illness in an asylum. It required two doctors' signatures for admittance, but eight for a release. Fifty years ago they were handing out lobotomies like they were "i didn't bite the dentist" stickers. Twenty years ago it was all about popping pills and self-help books. Now we're in somewhat of a limbo phase of what could be a brilliant mental health service, or the lunatics taking over the asylum, so to speak.

 I get that arts, crafts, and writing can be helpful for mental health. Fuck sake, I'd be a hypocrite if I didn't! Half of the posts on here are the result of some crazed manic or depressive moment. I've been through CBT, DBT, talking therapy, psychiatric evaluation, waitings lists, medication, medication changes, medication withdrawal. And what has been most consistent through all of that is my medication. Other than the brief month I had my meds changed and I believed I was the She-Kraken from the depths of Hell. That was... Not fun. For anybody. At all. Anyway. I had my last psychiatric evaluation over a year ago now and, while I have a Community Psychiatric Nurse (CPN) to work with and she's absolutely wonderful, I have yet to have an updated diagnosis from that evaluation. And the funny part? My original referral was for eating disorder treatment. Have I had any targeted help for that? Have I fuck! 

 But after countless rounds of CBT and Talking Therapy I was finally referred for DBT with my CPN (I'm busting out all the acronyms here!) I've had a look through what DBT is and to be honest? I get it. I get what Dialectical Behavioural Therapy is, I get what it's used for, and I get how it can be helpful. However I also believe that the whole premise of how it's presented is utter bollocks. In my last appointment I was asked if I'd been remembering my something-or-others, I'll call it my 'Here Man!s' for the sake of this post. And I truly couldn't remember what it was! Because it was, like, six simple points that had been over complicated in order to sound scientific and medical. It was something to do with physical health, eating, exercise and other bollocks. But having it called a 'Here Man!' when I'm trying to finish my final year of uni, at a time when what I should be focused on learning Sociology and key feminist theory, finishing my dissertation, I'm stuck in a counselling room trying to remember what 'Here Man!' stands for. And it isn't even that word, it's some other twisted acrostic poem to make the whole practice of therapy sound more scientific and weighted. Almost like those stupid songs or rhymes you learn in maths and science classes to calculate average speed and other bollocks. I can understand to others that it might make the therapy type seem more 'real' and 'provable', but to me it just makes me want to punch whatever bastard came up with them in the face. I get the principles, I get the helpful methodology, but asking me to remember what 'Here Man!' means makes me feel tested. It puts performance pressure on me in a space where I've come for treatment and I can't do it. It's like asking for help and then being reminded that you're under exam conditions and that you're the failure for not remembering it. 

 My CPN said to me this week that I seemed unusually distracted. She's used to me spacing out sometimes but this session was rife with periods of me staring off into space, partially listening and not really taking anything in. And I wholly agree. I felt that I'd failed, not remembering what 'Here Man!' stood for, as it was something I should have been practicing in order to get better. But again, when you're at such a low point that you don't even want to get out of bed or open your eyes, do you really want to waste your time trying to remember what the H, the E, the R, the other E, etc, all stand for? 

 One of the suggestions from this session was that I check out something called the Recover College Collective. It offers BTECs and stuff and helps with mental health apparently, it's like peer-mentoring for crazy people. I had a look at the 'prospectus' with my CPN and, while it sounds interesting, I completely zoned out. Emotional regulation through interpretive dance? Art classes? Writing? This is the shit that turns me off therapy. I'm sick of sticking fancy labels on simple concepts to make them sound more credible. I'm sick of colouring books being the cure-all solution for anxiety. Because when people hit a bad patch, try these things, and they don't work, we feel like failures. We feel like we're failing at getting better. And it's not fun. It's really not fun.

 I'm not writing this as something against these therapy types or anything else, I'm writing it from my experience. Giving something a stupid name and label doesn't make it a cure, and it doesn't make it helpful. It might make it sound more credible to those who try to measure it as a biological experiment, but for me it just means frustration. It means headaches I don't need, reading I don't want to do, and interacting with new people that I don't want to meet. All I want is a therapy type where somebody will tell it how it is, without making it sound either sciency-fancy or arty-farty. Is that too much to ask?


 Note: this isn't me condemning these therapy types, I can't stress that enough. But shoving them down somebody's throat when they're already sick to fucking death of saying 'help, I don't understand' isn't helpful.

Bitch in the Kitch: Cooking Therapy and Self-Love

 Welcome back! After another (though slightly shorter than last time) hiatus I'm back to the bloggersphere, I did warn you folks! As has been mentioned in previous posts my mental health hasn't been great but it's certainly on the up at the minute. It's a bit like a seesaw, normally with the kid on one end having rocks in their pockets. At the minute though I think both kids have stopped and are just chilling, chatting and eating cake on there - with the odd wobble up or down. Anyway, glad to be back.

 Some of you probably already know that I'm quite a big foodie, I love everything from cooking it to eating it. And this might come as quite a surprise, but it's actually a common thing for those of us with/in recovery from eating disorders/distress to enjoy making food for various reasons; be it feeling we have control over food, control over our bodies through that, and/or loving ourselves and nourishing ourselves in the recovery process. I find that there's something therapeutic about following a recipe and making something delicious. I love the structure of recipes, almost in a way of being given instructions, otherwise I can get a bit panicky and edgy; recovery is a long (again) seesaw-y process and I'm still at the stage of needing to know EXACTLY how much and of what I'm putting into food. The kitchen has always felt like a safe haven for me. It's where I first learned the joy of making things with my hands, making play doh with my Mam, and baking and cooking as a child, the feeling of eaten something I'd created (yes, I may have had a few nibbles on the play doh...). It's where I'd first drink with my friend and her Mam in their kitchen, enjoying Saturday nights as a teenager giggling over wine and discussing the world ahead of us. It's where I feel I do my best for my partner; I may have my shortcomings but I'll always say I'm a damn good cook and being able to feed people I love brings me a lot of happiness, leaving me feeling whole and refreshed.

 While looking for something yummy to cook for myself and Paulobear I found myself on Cooking On A Bootstrap, the website of the incredible Mx. Jack Monroe featuring delicious recipes interspersed with political and social justice activism, I'm such a huge fan of them!!  Their writing is so poetic and relatable, and at the same time so accessible and non-threatening. Admission time: I've grown up always being told what a clever girl I am, yet at the same time I feel like a total, total fraud because I struggle with a lot of words; not the spellings or pronunciations of them but the meanings. I often end up feeling embarrassed in conversations when unknown words come up, so I'll either keep my head down and keep quiet, or feel like a muppet and ask what it means while thinking they must think I'm ridiculous. Or secret option number three: slyly Google a word, worry I look ignorant for looking at my phone instead of paying attention, then continue to berate and shame myself for not knowing the word. Getting back to the topic at hand though!

 I came across a delicious looking recipe today that I will be making for tea tonight, and not only do I have all the ingredients to hand (including fresh kale from my Grandma and Granddad's garden!!) it was so beautifully written that I just had to share it with you folks. Very aptly titled Self-Love Stew one part particularly stood out to me:

"The stirring is key. It is soothing. It is mindless, not mindful. Sod mindful. My mind is full enough. It is a minefield. Tonight I want to stir some stuff and stare at my hands or into nothing."

 It isn't written as a traditional recipe but it's more or less a much better alternative (for me personally, and most likely others of you out there) to guided meditation. I'm so fed up with being told I need to be more mindful, I find the whole concept difficult to grasp and apply to myself, so such advice on mindfulness and exercises to become 'mindful' etc stress me beyond what I already had been. It creates a feeling that I'm failing at mental health recovery, that I'm even rubbish at trying to get better. 

 Looking at cooking and eating as a way of showing care to myself and others has also been an incredibly helpful tool in my mental health and more specifically eating distress recovery, rather than food being a way to control and punish myself. And while I now and then get the odd stupid comment along the lines of "hahaha, you're a rubbish feminist! Being in a kitchen and looking after a man hahaha *tips fedora*" I find it to be the exact opposite. Using it as a tool to look after myself and making myself a better person to be around, I've never felt like a better feminist.

 A huge thank you to Jack Monroe for their wonderful recipe and their general being wonderful-ness, you are an incredible human being!!

 Much love, this Bitch is off to the Kitch! xx